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Tele-Medicine to Support People Suffering from Alzheimer’s Disease and Cognitive Decline

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Need institute and LifeCharger are collaborating to support people with cognitive decline and their caregivers.
Thanks to tele-medicine and tele-monitoring, the service offers remote help, with a view to “Continuity Care”. Limited access to continuous assistance and care services often translates into a feeling of abandonment for patients and their caregivers.
This is why we thought of the concept of “Continuity Care”, which means coordinated and continuous healthcare, provided by different professional identities and aimed at people suffering from chronic pathologies. The service, dedicated to people who already have a diagnosis and assigned therapy will be implemented through an APP that will offer continuous support to the patient and his/her caregiver and will enable healthcare professional to monitor the progress of the disease.

In detail, the APP allows the patient and caregiver to:
• receive the support plan
• schedule day to day activities
• collect data regarding the execution of the various activities
• book appointments with healthcare professionals involved in the service and share the results in a safe way

The healthcare professional, through the platform, will be able to:
• independently manage appointment schedules for each resource/professional
• create and send support plan, which may include physiological parameters to measure, questionnaires to complete, informational content relating to the service catalogues, personalized information and communications
• view data shared by caregivers securely and in compliance with privacy regulations

For further information, please consult the website www.needinstitute.org or write to info@needinstitute.org

Neurobiologist Researcher on Amyotrophic Lateral Sclerosis (ALS)

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Rachele Marino received her Master’s degree in Genetics and Molecular Biology from “La Sapienza” University of Rome and completed her internship at the Department of Molecular Medicine, where she studied the role of “paused promoters” in acute myeloid leukemia (AML), demonstrating that aberrant DNA hypermethylation is associated with a significant reduction of H3K4 chromatin marker in an AML cellular model.
She then completed a PhD in Human Biology and Medical Genetics from “La Sapienza,” where she studied the role and function of Argonauta2 during senescence and identified the nuclear key interactors of this protein.
Dr. Marino continued her career in neuroscience at the Ebri-Rita Levi Montalcini Foundation in Rome, where she investigated the role of SUMOylation in neurodegenerative diseases that include Amyotrophic Lateral Sclerosis (ALS), Alzheimer’s, and Parkinson’s. She explored the regulatory mechanism of TAU aggregation and its post-transcriptional control, specifically SUMOylation, in primary neurons and neuroblastoma cell lines.
Since August 2023, Rachele Marino, as a researcher at the Need Institute, has received a scholarship that allows her to continue her research focusing on the mechanism of the re-localization and aggregation of the TDP-43 protein at the cytoplasmic level, which is a hallmark of ALS pathology.
Particularly, she will evaluate how TDP43 SUMOylation impacts the citotoxicity in primary neurons and fibroblasts derived from ALS patients.

World Alzheimer’s Day

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On the occasion of World Alzheimer’s Day, the second edition of the “Cena in Viola” will be held on 21 September 2022, a fundraising event to enhance and support the initiatives of the Alzheimer’s Village in Figino, near Milan.

The Need Institute foundation, sponsor of the event, will also be present for an informative dialogue with families and caregivers interested in Alzheimer’s disease.

The evening is open to all and the entire proceeds will be used to support the initiatives of the Alzheimer’s Village.

For further details: info@equacooperativa.it or +39 329 656 0807

4th edition MASTER IN APHASYOLOGY: September 2022- April 2023

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NEED INSTITUTE is pleased to announce that during the academic year 2022/2023 (September 2022 – April 2023) the fourth edition of MASTER in APHASIOLOGY will be held, completely renewed and updated. The course will be delivered online in synchronous didactic mode to ensure interactive activities and direct dialogue with the teachers. Lessons will be held on Saturday and Sunday. ECM accreditation will be requested (50 credits planned for 2022 and 50 for 2023) in partnership with the Integrated Phycotherapy School (SPI). There are 40 places available and will be assigned according to the time criterion of enrollment, which is considered concluded upon payment of the deposit. For more information and to communicate your interest in enrollment you can write to

info@needinstitute.org

BrainArt project

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The traveling photographic exhibition on the “BrainArt” project, inaugurated in Milan at Palazzo Lombardia and then re-proposed also in Lecco and Monza, ended in Bergamo.

All the details on the “BrainArt Project” are available on the website https://interreg-italiasvizzera.eu/notizie/convegno-brainart-un-approccio-artistico-creativo-nella-cura-delle-persone-con-patologie-dementigene/

 

Park-Up: the tele-rehabilitation service for people with Parkinson’s disease is active

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It’s a great pleasure to inform you that Need Institute has activated Park-Up, the first tele-rehabilitation service that offers motor, cognitive and speech therapy activities aimed at people with Parkinson’s disease. The service is provided by specialized therapists through a multi-channel technological platform. The personalization is based on the assessment of the functional status of the person through cognitive, motor and speech therapy questionnaires, following which the therapists can assign suitable and personalized activities to the subject’s profile and can monitor the progress of the rehabilitation path in real time, making the necessary changes and keeping in constant contact with the user through video calls. The service is run through tablets, which could be provided to those who are willing to participate in the a European project  called ProCare4Life (https://procare4life.eu/).

For information visit the page https://www.needinstitute.org/park-up/eng

or write to park-up@needinstitute.org.

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“BrainArt” project

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“BrainArt”, the Italy-Switzerland Interreg project (https://www.needinstitute.org/brain-art/), which saw us engaged in the role of scientific partner, ended. The goal is to promote the care of people with dementia through new technological and artistic-creative approaches.
The event for the presentation of the works, which can be followed thanks to the live streaming at the following link (https://mediaportal.regione.lombardia.it/embed/live/13639), will take place on 10 May 2022, from 10 am to 1pm, at the Belvedere of Palazzo Lombardia (39th floor) in the presence of the highest regional authorities.

At the same time, the photographic exhibition of the project will be set up in the courtyard of Palazzo Lombardia, which can be visited from 9 to 11 May. The same will be repeated in Lecco (Piazza Cermenati – from 12 to 19 May), in Monza (Piazza Trento and Trieste – from 20 to 25 May) and Bergamo (Quadriportico del Sentierone from 26 May to 1 June).

 

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Read the press release

Master in Aphasiology 2022/23

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We are organizing the fourth edition of the Master in APHASIOLOGY for the academic year 2022/23. The course, completely renewed and updated compared to previous editions, will be delivered online in synchronous didactic mode, to guarantee interactive activities and direct dialogue with the teachers. Compatibly with health measures, a workshop module and face-to-face discussion are also provided. All lessons will take place on Saturdays and Sundays. ECM accreditation will be requested (50 credits planned for 2022 and 50 credits for 2023) in partnership with the Integrated Psychotherapy School (PSI). Information about the program, dates and registration procedures will follow shortly. For more information and to communicate your interest in enrollment, you can write to info@needinstitute.org

Memory as a heritage of oneself, a meeting organized by Banca Patrimoni Sella & C.

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The #memory is the patrimony par excellence of each person: deposit and archive, a mirror of the time passed and a “circulating library” in relation to the history of the world. #Culture, intelligence and conscience reside in memory, as part of oneself and of the community.

 

Investigating the neurological sciences, promoting #research, awareness and memory preservation is among the goals of Need Institute. This is what we talked about on November 25, 2021, with the guests present at the event organized by Banca Patrimoni Sella & C. in an evening dedicated to “memory as #patrimony of oneself”, sharing the meanings of the infinite forms that a heritage can to assume, presenting the most advanced research that the Need Institute is carrying out on predictive biomarkers of Alzheimer’s disease.

 

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Advanced Training Course in “SPEECH THERAPY MANAGEMENT OF COMMUNICATION NEUROLOGICAL DISORDERS IN ADULTS” 2nd edition

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October 2021 – December 2021 (50 ECM foreseen – 50 hours of online training)

The second edition of the Advanced Training Course in “Speech Therapy Management of Communication Neurological Disorders in Adults”, in synchronous video conference, will start on October 16th, 2021. Therefore registrations will be open until October 15th, 2021. Some places still available.

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